Happy World Down Syndrome Day

World Down Syndrome Day 2016

My Dearest Emma,

I’m sitting here in tears, trying to find the words to tell you how much you mean to me. Trying to find the words to express to you how very thankful I am, my sweet child, for my most precious gift that is you. I want so much to tell you, Emma, that I am absolutely honored to be your mother. Me and you are like peanut butter and jelly, baby. We were meant to be together. See, today is a very special day for our family. Today is World Down syndrome Day! Today we celebrate how awesome you are and we celebrate your extra 21st Chromosome! So, I’ll do my best, monkey doodle, to tell you what you mean to me.

Emma, I know I’m not perfect. I know I work a lot and could always spend more time with you. I could be better about keeping the house tidy, or make you eat organic veggies at every meal. I know I get distracted by Facebook more often than I should. But Emma, that is not a reflection of my love for you. Emma, I see other moms, who are always on time, who advocate like crazy, and I feel like I may not be doing enough for you. What I do know is how much I love cuddling with you under a blankie watching Frozen for the billionth time. I love hearing you say,”Mommy, wook!” as if I have never seen Olaf on the beach before! I love to hear your giggles when I tickle you, I love how you say,”here I am!” when we play hide and seek. I love the way you say,”Not yet!” when I say its bedtime. Hearing you say,”sweet dweams!” is bittersweet as another precious day has come to an end. I know how hard you have to work to say these words, Emma. I know you have so much to say but don’t have all the words to say it. But I hope you know, baby girl, that I still get you. I still know when you’re giving me attitude. I still know when you’re sad, hurt, or mad. I may not always understand what’s going on in that spectacular mind of yours, but I know its something great! And I hope you know how much I love you. I hope you feel how much I love you in my hugs and my kisses.

Going through pictures, trying to find the right one to show how awesome you are for World Down syndrome Day, is like trying to fit an ocean into a small cup! How do I show the world how amazing you are in a few pictures? How could they possibly come close to expressing all that you are? Looking at your bright smile, reminds me of how beautiful you are. Looking at how much you have grown, I am flooded with the memories of all that you have achieved! Things that so many parents take for granted like walking, and talking. Things that most parents don’t worry about like Physical Therapy, Occupational Therapy, Leg Braces, Gait Walkers, Speech Therapy, IEP’s, and changing schools more than you should have had to. How you bounced back from your heart procedure like it was no biggie at all. How your paintings bring me so much joy. Through it all, you have shown me what it really means to be resilient, to have Faith, and to be grateful. How do I show everyone the joy you bring me when you say ,”WOW! BEAUTIFUL!” like I’m wearing a fancy evening gown on the red carpet and all I’m wearing is sweats and a t-shirt! LOL!

So, on this World Down Syndrome Day, Emma, I celebrate you. Down syndrome doesn’t define you but it is a part of you. A part of you that has allowed you to shine bright and to be stronger and more compassionate than most people I know. I know it doesn’t make you a perfect angel like some people think and I’m glad.  I don’t know what the future holds for you, baby, but I do know that whatever comes your way, you will handle it like a champ, because you always do. And Daddy and I will do our best to support you in all you do. You have made me a better person, Emma. I wouldn’t change you for the world but I will do my best to change the world for you. ‘Cause Girl, you’re amazing just the way you are.

Love your #1 Fan,

Mommy

Priscilla Davis

Priscilla Davis

Mother, Massage Therapist, Business Owner, and Blogger

Priscilla Davis is a mom to amazing Princess Emma and a (mostly) loving wife. By trade she is a talented and passionate Massage Therapist. She is an old soul who believes in helping people, especially mothers, live their best lives possible.